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Family Voices Colorado is a chapter of the national, grassroots organization composed of families and friends who care for and about our children with special health care needs. Family leaders from around the nation organized Family Voices in December 1992. The primary goal of the organization is to ensure that our children's health is addressed amidst change in public and private health care systems. Currently, there are over 40,000 Family Voices members throughout the country.
What We Do
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Information and Referral
If you are looking for a health care provider, help to pay for a health or related service provider, programs a child or adult with special needs might be eligible for, connections to other families, advocates, etc we probably can help. 1-800-881-8272
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Provider Hotline
The Hotline is designed for pediatric providers offices that see patients with Medicaid or CHP+. Experienced Hotline staff can answer questions about and provide resources for all children but especially those with special health care needs, including kids with disabilities and chronic conditions.
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Advocacy Support Information
If you or a family you are working with has a problem with a health insurance plan, communicating with a service provider, navigating Medicaid or other public systems, need individual health insurance counseling (such as in a benefits decision and help with the appeals process) we can probably help. 1-800-881-8272
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Training
Training events can be tailor-made to the needs of your population. Navigating Health Payer Systems, Creating Effective Letters Medical Necessity and Appeals Packages, Billing and Coding for Health Care Providers Who Serve Children with Special Needs, Systems and How They Are Funded, Medical Home, Part C Funding Hierarchy, Medical Record Keeping Systems for Families, Self-determination, and all topics covered in the Family to Family Health Information Network Statewide Training Events are readily available now.
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Systems Change/ Policy Work
Family Voices Colorado employs a part time lobbyist to track state legislative issues that impact children and youth with special health care needs (CSHCN). The staff members also work on many policy committees to ensure that the stories and data regarding this population are presented to the decision makers at all levels. If you have a story that you think might be helpful to an elected official or other policy-making persons and it regards the access to needed services by children with special needs, let us know!
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